What is sickle cell disease?
Sickle cell disease is an inherited blood disorder that turns normal round blood cells into cells that are misshapen that resemble that of sickle or cresent moons.
What are some of the symptoms associated with living with sickle cell?
Many who have sickle cell experience episodes of extreme pain called ” sickle cell crisis” these episodes can last for unpredictable amounts of time. They can be brought on by some triggers, or they come unexpectedly.The sickle cell gets stuck in blood vessels and blocks the blood flow. Those living with sickle cell during those “pain crisis” episodes experience pain in their hands, feet, stomach, back, chest, and other areas of the body. Those living with sickle cell oftentimes have anemia or low hemoglobin which can make them feel fatigue. They are easily exhausted due to the shortage of red blood cells. Many often have a yellow tint to the whites of their eyes of jaundice.
Warriors & Families
Although, many people of all races and backgrounds live with this disease many are warriors determined not to let this disease win! They are mothers, fathers, husbands, wives, children, and through the advancement in medicine grandparents. Many have decided to share their story of living with sickle cell, and many have chosen to advocate in their own way in spreading awareness. We are one of those couples who have decided to do so in sharing our story within our respected platforms.
Love, Marriage, Family, and Sickle Cell
Marriage in the 21st century has it’s own unique challenges. Many marriages have various obstacles to face, but balancing a chronic illness within marriage can make those obstacles even harder. We will soon celebrate a decade together in hand and marriage. We would like to encourage and empower other couples though sharing our story to stay committed building their marriage understanding the bigger picture of growing their families. Sickle cell doesn’t define our marriage, but it does make us aware to fullest the importance of honoring our vows. Clayton is an associate professional licenced counselor. I am an empowerment speaker and coach focused on building families. We particularly would like to encourage those who not only have a loved one living with sickle cell, but we want to encourage any couple who has to cope with difficult circumstances not to throw in the towel. There is power in love, having faith in each other, and putting your trust in God.
Follow Sickle Cell Champions Association and Purpose Filled Mommy with Minimarie for various blogs, interviews, information, advocacy events, and more within the sickle cell community.